Category Archives: Congenital Heart Disease

Slow Down

Alex has been on blood thinners since before he could walk, so in the back of my mind I’ve always worried about him falling and hitting his head, or getting cut, or hitting his nose and making it bleed.  Whether … Continue reading

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If not now…

Alexander’s most recent cardiology clinic gave us a scare.  The truth is, given the complexity of Alex’s condition, we have been blessed with great clinic results, and we’ve become accustomed to the type of clinic visit that feel more like … Continue reading

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Stay Strong, Mom

One of the many things we’re grateful for over the last six years has been the opportunity to meet some incredible people.  I’ve come to understand now naive I was before Alexander was born to the challenges that so many … Continue reading

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Milestones

Being a heart-Dad is a constant lesson in perspective.  The last six years have taught me to do my best to appreciate each day, and to make the most of our family time.  I have to admit, this effort is … Continue reading

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Why Us?

I’ve never been one to give into feelings of despair.  I’m a generally positive guy, and pretty good at keeping a level head and remaining optimistic about the future, even in the face of a daunting reality (I am a … Continue reading

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We Didn’t Know

The more heart families we get to know, the more I think about a simple division that exists for parents in our situation; those who knew about their child’s condition before they were born, and those, like us, who did … Continue reading

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