Category Archives: CHD

The Monitor

Posted on May 22, 2018 by Matt

For a few months after Alexander’s first open heart surgery I had trouble sleeping after we got home.  This was different from the exhaustion all parents go through while in the hospital.  It wasn’t directly caused by the fear and … Continue reading →

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Stay Strong, Mom

Posted on March 9, 2016 by Matt

One of the many things we’re grateful for over the last six years has been the opportunity to meet some incredible people.  I’ve come to understand now naive I was before Alexander was born to the challenges that so many … Continue reading →

Posted in CHD, Congenital Heart Disease, Heart, Heart Baby, Heart Dad, Right Atrial Isomerism, Uncategorized | Tagged , , , , , , , | Leave a comment

My child

Posted on January 3, 2016 by Matt

In the midst of all the worries and fears we carry as heart parents, one of the things I’ve found most challenging is watching my child grow up much faster than I had intended.  I do believe that the experiences … Continue reading →

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Milestones

Posted on November 1, 2015 by Matt

Being a heart-Dad is a constant lesson in perspective.  The last six years have taught me to do my best to appreciate each day, and to make the most of our family time.  I have to admit, this effort is … Continue reading →

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Why Us?

Posted on October 20, 2015 by Matt

I’ve never been one to give into feelings of despair.  I’m a generally positive guy, and pretty good at keeping a level head and remaining optimistic about the future, even in the face of a daunting reality (I am a … Continue reading →

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We Didn’t Know

Posted on September 29, 2015 by Matt

The more heart families we get to know, the more I think about a simple division that exists for parents in our situation; those who knew about their child’s condition before they were born, and those, like us, who did … Continue reading →

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